Thursday, March 29, 2007
Trying to Live On My Own
Living on campus has been difficult. The accessibility in the dorms has been a challenge. Just recently, my parents began kicking around the idea of me living on my own some day. My dad brought this up late last week, and I thought that he meant that I would live completely on my own in my own house or apartment- from the way he stated it at first. I had NO idea that he was thinking of an assistive living setting. Boy, was I confused!Today, I had quite an adventure. I began exploring a possible assistive living arrangement, the Mary Bryant Home for the Blind, which is located just outside of Springfield. The nice part about the facility is that the rooms are nothing like those in Lincoln Residential Hall. They are MUCH bigger.Another awesome aspect of the Mary Bryant Home is that it's a one-story facility, and there are no stairs. That really makes me THRILLED because I won't have to contend with any uneven surfaces if I have to use my wheelchair to get from any long distances.I also learned that the facility houses young adults and senior citizens, which makes me feel that- if I do end up living there, I will have an opportunity to make lots of friends, and I won't have to live on my own- without any help, which is the primary thing that scares me about having a place of my own.A big advantage would be that there would be accessible transportation to help me get, let's say, to and from school- for example. The one thing is, like the other things my mom and I are hoping to find out, would be whether there is a cost or fee that I'd have to pay.Among other homely emenities, there is an in-house barber shop, beauty salone, and store.While visiting the facility today, I saw and heard some dogs roaming around the Home. Some of the staff members bring their dogs to entertain the residents. That's something I like A LOT. I'd probably miss my two dogs like MAD if I ended up living there. Having dogs around will make me feel like my two dogs are with me.My mom and I are hoping that this opportunity works for me. Our plan is that, if I'm able to get in, my Mom will help me move sometime this summer. I hope to find out sometime quite soon, hopefully this week- how I need to pursue applying to be a resident.This is such an exciting day/time for me.I'm currently waiting to hear back from the director of the facility about how I need to apply, so keep me in your prayers- and keep your fingers crossed- for the best.
Upon First Meeting
I think that it's interesting to share my experiences of trying to successfully make it through college. Using this blog, I am able to share my stories of things I like and how college has been such a big change for me- especially going to a college away from home and trying to live independently.
There are often people who have thoughts about people before they actually meet the person. Prior to meeting someone with a disability, people might think- "Oh, that person is crippled," or "She won't be able to succeed in college because she's disabled". People who first see me from afar might whisper various comments to each other. Little kids might also ask their parents, "Why does she walk like that"? These are the comments I often hear as I'm walking or even as I'm entering new places for the first time.
I also think that it's very interesting what people might think of me when I first meet someone new. . . or when they first meet me. People, upon first look at me, sometimes think that- just because I have a disability-I won't be able to acheive success. Growing up was quite difficult at times, especially if people "assumed" that I needed help all the time. Growing up in a society that doesn't really know a lot about disabilities- especially my disability, CP- really makes me want to educate them about it. I have tried just talking about my disability; however, I haven't really had much success with that. I mean, people sometimes don't want to listen to what I have to tell them about my disability.That's why I have resorted to sharing my disability through my writing. By writing about my disability, I am able to share my personal story of what it's like to have a disability that constantly presents itself in many challenges to my crazy life.Sure, my life is crazy, but that's all a part of being a college student. You know, the one thing in my life that's extremely crazy is actually being able to handle many courses at once. Not very easy! Because of my physical disability, my muscles wear out quite easily, making it nearly impossible for me to really be able to carry a heavy backpack (which I'm not supposed to do, anyway) full of very heavy textbooks."You're not supposed to carry all those books," my high school teachers used to say to me.I knew that, but what was I supposed to do. Now that I'm in college, I feel like I'm the only person who actually realizes that I'm not even supposed to carry any heavy books. However, I have had to carry the textbooks to and from my classes, and my back muscles have told me that they don't want me to carry those heavy books. Sometimes, I wonder if I should ask a fellow classmate to carry my heavy backpack for me. . . however, not all of my friends have the same class schedule as I do
There are often people who have thoughts about people before they actually meet the person. Prior to meeting someone with a disability, people might think- "Oh, that person is crippled," or "She won't be able to succeed in college because she's disabled". People who first see me from afar might whisper various comments to each other. Little kids might also ask their parents, "Why does she walk like that"? These are the comments I often hear as I'm walking or even as I'm entering new places for the first time.
I also think that it's very interesting what people might think of me when I first meet someone new. . . or when they first meet me. People, upon first look at me, sometimes think that- just because I have a disability-I won't be able to acheive success. Growing up was quite difficult at times, especially if people "assumed" that I needed help all the time. Growing up in a society that doesn't really know a lot about disabilities- especially my disability, CP- really makes me want to educate them about it. I have tried just talking about my disability; however, I haven't really had much success with that. I mean, people sometimes don't want to listen to what I have to tell them about my disability.That's why I have resorted to sharing my disability through my writing. By writing about my disability, I am able to share my personal story of what it's like to have a disability that constantly presents itself in many challenges to my crazy life.Sure, my life is crazy, but that's all a part of being a college student. You know, the one thing in my life that's extremely crazy is actually being able to handle many courses at once. Not very easy! Because of my physical disability, my muscles wear out quite easily, making it nearly impossible for me to really be able to carry a heavy backpack (which I'm not supposed to do, anyway) full of very heavy textbooks."You're not supposed to carry all those books," my high school teachers used to say to me.I knew that, but what was I supposed to do. Now that I'm in college, I feel like I'm the only person who actually realizes that I'm not even supposed to carry any heavy books. However, I have had to carry the textbooks to and from my classes, and my back muscles have told me that they don't want me to carry those heavy books. Sometimes, I wonder if I should ask a fellow classmate to carry my heavy backpack for me. . . however, not all of my friends have the same class schedule as I do
Politics Aren't Really Boring. . . Not Anymore
I think that it's interesting to share my unique "life" experiences of trying to successfully make it through college. Using this blog, I am able to share my stories of things I like and how college has been such a big change for me- especially going to a college away from home and trying to live independently. My disability, besides having the challenges of being able to successsfully be on my own, has also made getting involved in various activities quite a challenge. I used to think that people with disabilities.
I used to think that being involved in politics was only something that the able-bodied, sighted society only got involved in- whether in high school, college, and even after college. Now; however, I am beginning to learn that this just isn't the least bit true. I have been thinking of politics stereotypically, and I am learning that it is for anyone who is interested in making a change.
I used to think that being involved in politics was only something that the able-bodied, sighted society only got involved in- whether in high school, college, and even after college. Now; however, I am beginning to learn that this just isn't the least bit true. I have been thinking of politics stereotypically, and I am learning that it is for anyone who is interested in making a change.
The Long Haul
I think that it's interesting to share my experiences of trying to successfully make it through college. Using this blog, I am able to share my stories of things I like and how college has been such a big change for me- especially going to a college away from home and trying to live independently.
Travelling independently is something that I have had prior experience with, so going to Minnesota shouldn't even scare me. There's only one thing that scared me a little bit. While my PA was helping me, wash my sheets, make my bed, and organize my overnight bag. . . I informed her that I'm going to Minnesota tomorrow. I explained to her the reason why I'm going, and I asked out of curiosity- just how long she thought the trip might be. Like my PA yesterday, my PA today said that the trip should be quite lengthy-six hours at most. Boy, is that going to be a long day!
After she left, I discovered that the CR president e-mailed me with more information regarding the trip. Thankfully, they are going to pick me up in front of my dorm, so I don't have to walk a long way to the parking lot. However, what he said about how long travel is going to be made me cringe a bit. The information I received via e-mail said, "During the trip (which Mapquest says will last 8.5 hours), " This is going to be a long trip, and I bet people will probably be sleeping practically the whole way.
Travelling independently is something that I have had prior experience with, so going to Minnesota shouldn't even scare me. There's only one thing that scared me a little bit. While my PA was helping me, wash my sheets, make my bed, and organize my overnight bag. . . I informed her that I'm going to Minnesota tomorrow. I explained to her the reason why I'm going, and I asked out of curiosity- just how long she thought the trip might be. Like my PA yesterday, my PA today said that the trip should be quite lengthy-six hours at most. Boy, is that going to be a long day!
After she left, I discovered that the CR president e-mailed me with more information regarding the trip. Thankfully, they are going to pick me up in front of my dorm, so I don't have to walk a long way to the parking lot. However, what he said about how long travel is going to be made me cringe a bit. The information I received via e-mail said, "During the trip (which Mapquest says will last 8.5 hours), " This is going to be a long trip, and I bet people will probably be sleeping practically the whole way.
Why Share My Experiences
I think that it's interesting to share my experiences of trying to successfully make it through college. Using this blog, I am able to share my stories of things I like and how college has been such a big change for me- especially going to a college away from home and trying to live independently. Most people would probably think that college has a lot more freedom than high school. For me, as a result of the disabilities I have- I disagree.
It seems crazy for me to have to start all over as a "new" college student, but that's what happened when I decided to transfer from Roosevelt University in Chicago, Illinois to UIS here in Springfield, Illinois. It has been a major milestone in my life- one my parents were a bit nervous about at first- probably because of the challenges me disability hands me each day.
It seems crazy for me to have to start all over as a "new" college student, but that's what happened when I decided to transfer from Roosevelt University in Chicago, Illinois to UIS here in Springfield, Illinois. It has been a major milestone in my life- one my parents were a bit nervous about at first- probably because of the challenges me disability hands me each day.
What I Want People to Know About Me
I think that it's interesting to share my experiences of trying to successfully make it through college. Using this blog, I am able to share my stories of things I like and how college has been such a big change for me- especially going to a college away from home and trying to live independently. It's really crazy that I'm othe only person in my family with any kind of disability. My parents have done their very best to treat me as normally as possible. Unfortunately, being "normal" has never come easy for me during my childhood. I often felt extremely jealous of my younger brother, especially since he didn't have a disability- and he was able to run around, play sports, and hang out with his friends.
Me, on the other hand. . . well, I couldn't really do any of those things. I couldn't really play in any sports because there weren't many sports that were adapted for kids with multiple challenges. Yes, this really got me down- a lot! I'd see my brother and all his friends playing baseball, and I really wanted to join in on the fun. In a funny way, I felt like- and still do, actually- I'm the younger kid in the family.
Now- many years later, my brother- who has no visual or physical disability- can drive a car. When I learned that he wanted to drive, I wished that I didn't have a disability- so I could learn, too. In high school, I was in an adapted physical education class, and I did take the driver's education course. . . unfortunately because it was a part of the physical education requirement, but I never tried the driving training portion of the class because I had a feeling that my physical and visual limitations wouldn't allow me to drive.
Me, on the other hand. . . well, I couldn't really do any of those things. I couldn't really play in any sports because there weren't many sports that were adapted for kids with multiple challenges. Yes, this really got me down- a lot! I'd see my brother and all his friends playing baseball, and I really wanted to join in on the fun. In a funny way, I felt like- and still do, actually- I'm the younger kid in the family.
Now- many years later, my brother- who has no visual or physical disability- can drive a car. When I learned that he wanted to drive, I wished that I didn't have a disability- so I could learn, too. In high school, I was in an adapted physical education class, and I did take the driver's education course. . . unfortunately because it was a part of the physical education requirement, but I never tried the driving training portion of the class because I had a feeling that my physical and visual limitations wouldn't allow me to drive.
Baseball Season Approaches
In a week, baseball season will begin. Like many baseball fans, I have been waiting a long time for baseball season to start up again. It's a lot of fun to either watch games on TV or try to listen to them on the radio. If I listen to the games on the radio, I like to pretend that I am actually act the game, listening to the play-by-play commentary as I'm trying to see just what's going on all over the field of play. I like watching baseball games, but being legally blind, unfortunately, makes that a bit of a challenge that I often have to find alternative methods for knowing what's going on with the baseball game.
YAY For Good Grades In English
had a meeting with my English teacher yesterday morning, and I learned that I'm not missing any assignments, and I have a low B- a C in that class. This news made me really happy. Originally, the meeting with Professor Erin Tepen was going to ask all the groups in class who each person was coming along with their research paper. At least, that's what we were all told in class on Monday- when we were all asked what would be a good meeting time for everyone.
The short meeting began by asking each person individually how the process of writing their research paper was actually coming along. I explained that the challenge that I had faced at first was actually trying to find enough sources for the topic I had chosen to write about. Others in the group said almost the same thing, so I didn't really feel the least bit bad about facing challenges with this assignment.
As the meeting wrapped up, the grade book grades up to now were revealed. Each person's name was called individually, so they could see their grade for themselves. My grade had to be said in front of everyone, as I wouldn't have been able to see the regular-size type of the laptop screen. "Nico," Professor Tepen said, "you're doing O.K. You're not missing any assignments. " When this comment was given to me, I was overjoyed.
One of the other students, however, didn't even get the same comment. When our teacher showed him his grade, she explained to him that his grade could go up if he did well on this current research paper assignment. He told her he would try really hard to pull his grade up.
The short meeting began by asking each person individually how the process of writing their research paper was actually coming along. I explained that the challenge that I had faced at first was actually trying to find enough sources for the topic I had chosen to write about. Others in the group said almost the same thing, so I didn't really feel the least bit bad about facing challenges with this assignment.
As the meeting wrapped up, the grade book grades up to now were revealed. Each person's name was called individually, so they could see their grade for themselves. My grade had to be said in front of everyone, as I wouldn't have been able to see the regular-size type of the laptop screen. "Nico," Professor Tepen said, "you're doing O.K. You're not missing any assignments. " When this comment was given to me, I was overjoyed.
One of the other students, however, didn't even get the same comment. When our teacher showed him his grade, she explained to him that his grade could go up if he did well on this current research paper assignment. He told her he would try really hard to pull his grade up.
I Don't Want This Experience Yo Be Like My Camp Experiences
My adventure is getting closer and closer. In under 24 hours, I will be on my way to Minnesota. It'll be a long van ride, that's for sure- but. . . I'm used to it. It might seem crazy, but I have actually been on road trips before that were just as long.
For a few years growing up, I remember that I attended Lions' Camp for kids with visual impairments. The camp was originally located in Carbondale, Illinois- and that meant all the campers were piled on a school bus with practically no air conditioning for about 6 long hours, only making one stop during the entirre trip. For me, this wasn't easy, because I had to ascend and descend those awfully large stairs. The really low part of this experience was that I was one of a few campers who had multiple disabilities- needing a great deal of assistance at camp.
The majority of the other campers, A good majority of the other campers at this particular camp only had visual limitations. Very few of us also had physical limitations on top of being legally blind.
For a few years growing up, I remember that I attended Lions' Camp for kids with visual impairments. The camp was originally located in Carbondale, Illinois- and that meant all the campers were piled on a school bus with practically no air conditioning for about 6 long hours, only making one stop during the entirre trip. For me, this wasn't easy, because I had to ascend and descend those awfully large stairs. The really low part of this experience was that I was one of a few campers who had multiple disabilities- needing a great deal of assistance at camp.
The majority of the other campers, A good majority of the other campers at this particular camp only had visual limitations. Very few of us also had physical limitations on top of being legally blind.
Wednesday, March 28, 2007
No More Overprotective Mommy
Knowing my mom, I thought that she'd probably try to tell me not to go to Minnesota this weekend for the YAF conference. Luckily, I had the wonderful Iidea to let her know that she needn't worry about me- that I'd be taken care of this weekend. Knowing this made her quite impressed, impressed that I was taking part in a political experience. She said, "Have fun," and she also told me that she really wants to know all about the adventure when I get back from the busy adventure.
I know that I'm not going to be able to call and let her know what's going on this weekend, so I promised that I would let her know all about the conference when I get back. To my shock, she didn't get into her "Overprotective mommy" mode, and instruct me to call her when I leave UIS and get to Minnesota, but. . . I think she trusts me enough.
I know that I'm not going to be able to call and let her know what's going on this weekend, so I promised that I would let her know all about the conference when I get back. To my shock, she didn't get into her "Overprotective mommy" mode, and instruct me to call her when I leave UIS and get to Minnesota, but. . . I think she trusts me enough.
Clean Room Joy
I don't believe it! I actually got a comment of "Wonderful" made about the cleanliness of my room. I was out and about for a while this morning, which meant that I wasn't even around when it was time for my room to be looked at. I knew that, with the assistance of my PA this week, we could make my room spic and span- just in case today was going to be the day that someone was actually going to look at my living area. As it turned out, Chelsea did look at my living space.
Because I wasn't around, she left me a note under my door with her comments. I was astonished at the remark she had made about how clean my room actually was. I had a hunch that a comment of "satisfactory" might be the comment- if any, and I'd have to do more to make my living space cleaner and more to the likings of anyone who would look at my room. Upon returing from the meeting, I noticed that there was a slip of paper, under my door. I orginally thought that it might be a note telling me that I had a package. I picked it up, and began to read it. First, I saw my name and room number- along with the time of the inspection. I soon saw a comment, one that stopped me in my tracks- "AWESOME!" I've never- that I can remember- received such a good comment for keeping my room neat. . . ever in my life, that I can remember. That comment made me so happy that I just had to share it with as many of my friends as possible. Everyone was so proud of me. I'm especially proud of myself, knowing that this is one of the many challenges my physical limitations present me with.
My physical limitations make it awfully difficult to clean my bathroom/ or even make and straighten my bed successfully. I knew that room and living space inspections were going to be conducted; however, I thought that I wouldn't get very decent comments made about my room- especially considering that I really do the very best I can to keep everything clean and neat.
Because I wasn't around, she left me a note under my door with her comments. I was astonished at the remark she had made about how clean my room actually was. I had a hunch that a comment of "satisfactory" might be the comment- if any, and I'd have to do more to make my living space cleaner and more to the likings of anyone who would look at my room. Upon returing from the meeting, I noticed that there was a slip of paper, under my door. I orginally thought that it might be a note telling me that I had a package. I picked it up, and began to read it. First, I saw my name and room number- along with the time of the inspection. I soon saw a comment, one that stopped me in my tracks- "AWESOME!" I've never- that I can remember- received such a good comment for keeping my room neat. . . ever in my life, that I can remember. That comment made me so happy that I just had to share it with as many of my friends as possible. Everyone was so proud of me. I'm especially proud of myself, knowing that this is one of the many challenges my physical limitations present me with.
My physical limitations make it awfully difficult to clean my bathroom/ or even make and straighten my bed successfully. I knew that room and living space inspections were going to be conducted; however, I thought that I wouldn't get very decent comments made about my room- especially considering that I really do the very best I can to keep everything clean and neat.
Tuesday, March 27, 2007
Time to Have an Out-of-Town Experience
Like any other student here at UIS, I'm anxious for the weekend. Although I only have school twice a week, it often seems like my week tends to drag on for avery long time. I know I only have two classes a week, but I'm so busy that it sometimes feels like the week just drags on forever. Most weeks are like that, but this one has been a week out of the ordinary- a week where "magic" has been happening.
I am now TRULY attending the event this weekend. I just learned that there's one scholarship left- and one person can't attend- which means that the scholarship is mine. I'm DEFINITELY going to enjoy this experience fully. I'm going to be surrounded by people I don't know, but I'll also be with my friends from UIS.
I am now TRULY attending the event this weekend. I just learned that there's one scholarship left- and one person can't attend- which means that the scholarship is mine. I'm DEFINITELY going to enjoy this experience fully. I'm going to be surrounded by people I don't know, but I'll also be with my friends from UIS.
What am I going to eat for dinner? Me and lots of other college students wonder the same thing as we patiently wait for the cafe in Lincoln Residential Hall to open each night. For me, eating at the LRH cafe works out perfectly because I really don't have to worry about waiting a long time for my food, or even worry about trying to carry a massive tray of food to where I'd like to sit. The workers at the cafe realize that my physical disability limits my capability to carry large quantities of food, and they gladly bring the food to me.
The real challenge for me, besides the physical limitation of being unable to carry a large amount of food, is the fact that being legally blind means that- when I first ate at the cafe, I had to ask someone to tell me what was on the menu, in order for me to successfully determine what I wanted to have for dinner. Since then, I have memorized a lot of the menu, and I can now determine exactly what I feel like eating that night- except when there are specials involved; that makes deciding what to have for dinner a bit challenging.
The real challenge for me, besides the physical limitation of being unable to carry a large amount of food, is the fact that being legally blind means that- when I first ate at the cafe, I had to ask someone to tell me what was on the menu, in order for me to successfully determine what I wanted to have for dinner. Since then, I have memorized a lot of the menu, and I can now determine exactly what I feel like eating that night- except when there are specials involved; that makes deciding what to have for dinner a bit challenging.
Off-Campus Experience This Weekend
Since I've been at UIS, I haven't had any experiences where I actually left the state for an event. The only time I went off campus for a few hours was in February. Blue Crew had gone to McKendree College to watch our UIS Prairie Stars play the McKendree Bearcats in basketball. Does this experience really count as a travel experience, even though it was only for a few hours- and we returned the same night?
This experience is going to blow that "little road trip" right out of the water. This excersion will be longer, and more people will be going. Really- there will be a lot more people for such a big event- probably more people than I have ever seen in my entire life.
This experience is going to blow that "little road trip" right out of the water. This excersion will be longer, and more people will be going. Really- there will be a lot more people for such a big event- probably more people than I have ever seen in my entire life.
Political Involvement
Within the last month, I got involved in another organization here on the UIS campus. The College Republicans is a wonderful organization here at UIS that gives students an opportunity to learn first-hand about the world of politics in Springfield, Illinois. Prior to joining this organization, politics was just something that was quite difficult for me to understand, since it wasn't put into terms that young adults could comprehend very well. It wasn't even something that I felt I'd be good at, since politics has structures that often don't have very good outcomes.
I've told a few of my friends about the upcoming possibility, and they have both said "Have fun". In the past, I actually traveled out of Illinois by myself for a Youth Leadership pannel in Washington, D.C. Unfortunately, that experience just wasn't a lot of fun. An event the all the youth thought would be mostly geared and led by us, to our dismay, actually ended up focusing more towards the adults.
This particular event, I hope, will have a focus that's geared more towards how college students can become more involved in the world of politics. I am looking forward to meeting the candidates, who are supposed to speak at the convention this weekend, and I am also looking forward to meeting some new people- and networking with the candidates.
I've told a few of my friends about the upcoming possibility, and they have both said "Have fun". In the past, I actually traveled out of Illinois by myself for a Youth Leadership pannel in Washington, D.C. Unfortunately, that experience just wasn't a lot of fun. An event the all the youth thought would be mostly geared and led by us, to our dismay, actually ended up focusing more towards the adults.
This particular event, I hope, will have a focus that's geared more towards how college students can become more involved in the world of politics. I am looking forward to meeting the candidates, who are supposed to speak at the convention this weekend, and I am also looking forward to meeting some new people- and networking with the candidates.
Help from ORS
Maybe, college isn't so bad after all. I mean, today was such a good day for me- so far. I learned that Rehabilitation Services will pay for my college education. In a funny way, I am so glad to have learned this news. My mom, once she gets my e-mail and phone message, will have also learned the good news. Knowing this makes me so happy. My mom will no longer have to try to pay two sets of college tuitions each year- mine and my brothers. Combined, that is a lot of money to try to put two kids through college at the same time.
Why am I just learning this now? It's interesting how I never really learned this information during the actuall application process. I am glad that I have finally learned this helpful information. Maybe, now- I'll be able to get all of the help that I have been advocating for since the very beginning of this school year. That would be so nice!
Why am I just learning this now? It's interesting how I never really learned this information during the actuall application process. I am glad that I have finally learned this helpful information. Maybe, now- I'll be able to get all of the help that I have been advocating for since the very beginning of this school year. That would be so nice!
Website Craziness
I discovered- through word- of-mouth, that my picture is on the UIS homepage again. I am turning into somewhat of a celebrity here on campus. In the last picture on www.uis.edu, I was in a group photo as a result of helping out with the volleyball game. I knew- from hearing about it through my English teacher- that I had been in that picture already; however, this time I was shocked to learn that, for the second time in two days, my picture is on our website. Boy, is that weird!
Today, the exact same thing happened, only this picture was of me in my wheelchair- rolling around campus. I think I was headed to class. The strangeness is that I was first told about the picture very late last night. Usually, the website picture doesn't get changed until the next day; however, someone must have really wanted to put up a new picture as soon as possible.
Today, the exact same thing happened, only this picture was of me in my wheelchair- rolling around campus. I think I was headed to class. The strangeness is that I was first told about the picture very late last night. Usually, the website picture doesn't get changed until the next day; however, someone must have really wanted to put up a new picture as soon as possible.
Monday, March 26, 2007
Being Busy
Like many college students, I'm quite busy. I take part in several activities, which keep me on my toes. It's not as if I don't simply focus solely on homework. I think I'd drive myself crazy if I only focused a lot of my college life doing nothing but schoolwork. I'd like to get the complete college experience- doing schoolwork, going to classes, making friends, and taking part in activities that I really enjoy.
Unfortunately, having such a challenging disability has made getting the full college experience quite difficult- getting the full experience of living on campus, as a result of the hurtles my multitude of disabilities hands me quite often- hasn't been the least bit easy for me. I realize that I might not be the only student with a disability who feels this way; however, I feel that I am the only student who has the courage to stand up and express my true feelings about having this experience.
Unfortunately, having such a challenging disability has made getting the full college experience quite difficult- getting the full experience of living on campus, as a result of the hurtles my multitude of disabilities hands me quite often- hasn't been the least bit easy for me. I realize that I might not be the only student with a disability who feels this way; however, I feel that I am the only student who has the courage to stand up and express my true feelings about having this experience.
Day #1 Of A New Beginning
Yay, I feel like I have had a new beginning.
Today was my first day of having a personal assistant. I'm finally glad that I no longer really have to struggle with trying to do practically everything myself- like laundry and making my bed. I don't really know, however, if I'm always going to have the same PA. I just know that someone is going to come help me a few times a week, which makes me very ECSTATIC! This is something that I have been wishing for for a really long time. It was such an enjoyable experience, getting to share knowledge of the challenges having cerebral palsy, having epilepsy, and being legally blind present me all at the very same time. I also found out that- well, the lady who comes to spend time helping me a couple afternoons a week also has two dogs.
By today just being the very first day of having a personal assistants- two personal assistants, really, it was a chance for them to get to know me- as well as me getting to know them. However, whether or not the two PAs I had today are going to be my regular PAs for the remainder of this school year is uncertain to me at this point. Whether I'll have new PAs next year is also quite unclear right now.
Today, my afternoon PA helped me do laundry, which was awesome. She came to meet me as I was returning from school, which was quite surprising. I thought that I probably wouldn't have any help this afternoon, as the woman who came this morning is the person who usually hires PAs, and she told me that she really wasn't sure she'd be able to get someone to come help me this afternoon- as it was such short notice that she, herself, had received my case. Well, I'm really glad someone was actually able to come this afternoon after all.
Today was my first day of having a personal assistant. I'm finally glad that I no longer really have to struggle with trying to do practically everything myself- like laundry and making my bed. I don't really know, however, if I'm always going to have the same PA. I just know that someone is going to come help me a few times a week, which makes me very ECSTATIC! This is something that I have been wishing for for a really long time. It was such an enjoyable experience, getting to share knowledge of the challenges having cerebral palsy, having epilepsy, and being legally blind present me all at the very same time. I also found out that- well, the lady who comes to spend time helping me a couple afternoons a week also has two dogs.
By today just being the very first day of having a personal assistants- two personal assistants, really, it was a chance for them to get to know me- as well as me getting to know them. However, whether or not the two PAs I had today are going to be my regular PAs for the remainder of this school year is uncertain to me at this point. Whether I'll have new PAs next year is also quite unclear right now.
Today, my afternoon PA helped me do laundry, which was awesome. She came to meet me as I was returning from school, which was quite surprising. I thought that I probably wouldn't have any help this afternoon, as the woman who came this morning is the person who usually hires PAs, and she told me that she really wasn't sure she'd be able to get someone to come help me this afternoon- as it was such short notice that she, herself, had received my case. Well, I'm really glad someone was actually able to come this afternoon after all.
Sunday, March 25, 2007
Time
It's about time the weather begins getting nice. I doubt people are really going to want to be in class this week. Who really wants to be in school when the weather outside is so beautiful? Personally, I'd much rather like to spend as much time outside as possible. Hey, before we know it, spring and summer will turn back into fall and winter. It'll be cold, and I don't really think anyone would really want to be outside in cold, snowy weather. Being outside now is great, especially with warm breezes blowing. I don't even mind taking my time getting to the places I need to go. I really like to take my time, and enjoy this beautiful weather. Apparently, I'm not the only one who's been enjoying this lovely weather. Lots of my friends all have the same idea, and people have been out going for walks since it is so beautiful- for once.
Finally. . . Some Help
Ever since prior to coming to UIS, I have been working towards getting a Personal Assistant. I have spent so much time filling out application after application trying to get to this point. The early trials in this process were quite rocky. I got turned down because I wasn't around for an interview. Many of the missed interviews were due to failure to communicate. I'd make it quite clear on the application that- because of my mobility difficulties and difficulty getting transportation- I would like a phone interview. At least one time, I was told that I had to come to the ORS office and wait in a long line for an interview appointment. That just wasn't happening!
So, the process of filling out another application after being turned down numerous times continued- for what seemed like forever. I really didn't think that being elegible for a Personal Assistant was ever going to happen. A process, which began last semester- and has continued for quite some time this semester- has finally ended with GREAT results. The end result to this tedious process were a few phone calls, plus a meeting with my Home Services caseworker.
My case worker and I drew up a plan of what I would need help with, when would be a good time for the help, how many hours a day. She and I drew up a plan of action, and we've decided that- if need be- we'll revisit the plan periodically to make any changes that we feel are necessary. My class and activity schedule, for one, are some changes that we're going to have to eventually make to the current plan. That shouldn't be too hard- since we're both on the same frame of mind.
The Home Services agency that my Home Services caseworker uses for her clients contacted me late last Thursday to determine the help that I would need. The woman that I spoke to said she'd try to get me some help by Friday; however, that never actually happened. I had a feeling that, since the plan had just been drawn up, it would be too short notice for a PA to come last week. That was a bit of a downer for the process, which I thought would continue forever. But, the bright side to this lengthy process is that I'll get help as soon as tomorrow.
So, the process of filling out another application after being turned down numerous times continued- for what seemed like forever. I really didn't think that being elegible for a Personal Assistant was ever going to happen. A process, which began last semester- and has continued for quite some time this semester- has finally ended with GREAT results. The end result to this tedious process were a few phone calls, plus a meeting with my Home Services caseworker.
My case worker and I drew up a plan of what I would need help with, when would be a good time for the help, how many hours a day. She and I drew up a plan of action, and we've decided that- if need be- we'll revisit the plan periodically to make any changes that we feel are necessary. My class and activity schedule, for one, are some changes that we're going to have to eventually make to the current plan. That shouldn't be too hard- since we're both on the same frame of mind.
The Home Services agency that my Home Services caseworker uses for her clients contacted me late last Thursday to determine the help that I would need. The woman that I spoke to said she'd try to get me some help by Friday; however, that never actually happened. I had a feeling that, since the plan had just been drawn up, it would be too short notice for a PA to come last week. That was a bit of a downer for the process, which I thought would continue forever. But, the bright side to this lengthy process is that I'll get help as soon as tomorrow.
My Job Had A Victory
V-i-c-t-o-r-y! Blue Crew was victorious against FAST (Faculty and Staff team) this afternoon. We didn't win all five games; however, we managed to win three out of the five games that we actually played. Unfortunately, we had no spectators come out to watch our matches. In a way, that was not the least bit cool. I bet that more people would have come to watch the tournament if it had been at a different time. . . or even if it had been scheduled for a different day. Knowing that the weather was beautiful, the games could have been played outside. If that had been put into consideration, more people might have come out to watch Blue Crew KILL FAST! People walking by would have had a glimpse of an exciting afternoon.
FAST and Blue Crew had such a good time today, we hate to only do this once a year. The hope is to do this more often. It's not for charity, but it is a lot of fun. It gives students and staff a chance to interact outside of school. Until I actually became a student here at UIS, I only thought that students and faculty normally didn't do much interaction outside of the classroom doors. Boy, was I wrong!
FAST and Blue Crew had such a good time today, we hate to only do this once a year. The hope is to do this more often. It's not for charity, but it is a lot of fun. It gives students and staff a chance to interact outside of school. Until I actually became a student here at UIS, I only thought that students and faculty normally didn't do much interaction outside of the classroom doors. Boy, was I wrong!
Such A Nice Day Today!
Although the v-ball game isn't untill 3, I'm going to walk over in a little while. This way, I'll be a bit early. Since it's so nice out, nothing beats enjoying the weather this weekend. I'm not the only one who has the urge to spend some time outside enjoying the weather. Lots of the students have the exact same idea. Who would want to pass up an opportunity to be outside enjoying such a glorious day?
It doesn't really matter if people have homework that needs to be done for class, everyone is taking time out of their schoolwork to be outside having fun. Some kids are playing frisbee or going for walks along the quad. It doesn't matter what the activity is- as long as people are taking the time to enjoy this awesome spring weather. I know I'm enjoying it.
It doesn't really matter if people have homework that needs to be done for class, everyone is taking time out of their schoolwork to be outside having fun. Some kids are playing frisbee or going for walks along the quad. It doesn't matter what the activity is- as long as people are taking the time to enjoy this awesome spring weather. I know I'm enjoying it.
Finally. . . An End to Winter
During the winter months, it was no fun for me to try to venture outside- whether it was on foot or in my wheelchair. Not fun at all! Now, I can go short distances on foot, and just enjoy the nice weather. I hope it sticks around, and we don't end up getting anymore blasts of wintry weather for a really long stretch of time. Or, I am probably going to roll along in my wheelchair for longer trecks on campus- and just enjoy this nice weather.
I haven't been able to enjoy the nice weather for quite a while. Winter was blah! Getting around. . . . trying to get around was no fun at all. As it is, I have a great deal of difficulty maneuvoring around campus as a result of the challenges my disability has caused me to face. What I like is that I can now enjoy this beautiful weather, and I don't have to be concerned about getting my wheelchair caught in a snowdrift or slipping on icy pavement.
Spring is my kind of season. It isn't too hot, and it's not really cold. Of course, we're getting a taste of summer right now. Summer, however, doesn't really start until June, I think, and that's usually when it really begins to get hot and unbearable. Summer is one of the hated seasons for me. It's awefully tough to actually enjoy the weather because it gets pretty hot. Spring, on the other hand doesn't come along with brutally hot and humid weather- only rain and thunderstorms.
I haven't been able to enjoy the nice weather for quite a while. Winter was blah! Getting around. . . . trying to get around was no fun at all. As it is, I have a great deal of difficulty maneuvoring around campus as a result of the challenges my disability has caused me to face. What I like is that I can now enjoy this beautiful weather, and I don't have to be concerned about getting my wheelchair caught in a snowdrift or slipping on icy pavement.
Spring is my kind of season. It isn't too hot, and it's not really cold. Of course, we're getting a taste of summer right now. Summer, however, doesn't really start until June, I think, and that's usually when it really begins to get hot and unbearable. Summer is one of the hated seasons for me. It's awefully tough to actually enjoy the weather because it gets pretty hot. Spring, on the other hand doesn't come along with brutally hot and humid weather- only rain and thunderstorms.
Unusually Warm In March
I can't believe how warm it has been these last few days. When the normal high temperatures are normally in the 50s and 60s, the temperatures have actually soared into the 70s. Today, the temperature is supposed to climb up close to 80 degrees. Knowing this nice weather is probably here for a while, I decided to wear shorts today. By it being so nice and warm, I would probably broil if I had worn jeans instead of shorts.
For the second day in a row, this nice weather is probably going to bring a lot of people outside. During winter, we all began getting "spring fever" because it was getting so boring to just stay inside all time. I mean, who would want to stay inside when the weather is so nice out? I know I wouldn't, but it'll be nice to get out for a little while later today. Yes, it'll be nice enough to take a little walk to and from the job that is ahead of me today.
For the second day in a row, this nice weather is probably going to bring a lot of people outside. During winter, we all began getting "spring fever" because it was getting so boring to just stay inside all time. I mean, who would want to stay inside when the weather is so nice out? I know I wouldn't, but it'll be nice to get out for a little while later today. Yes, it'll be nice enough to take a little walk to and from the job that is ahead of me today.
I'm actually surprised this isn't posted on the UIS homepage- www.uis.edu. Today is an awesome day for me. I get to be an assistant coach for a charity volleyball game that puts Blue Crew up against the staff and faculty at UIS. It's going to be an amazing game, I feel. From what I've been told, this match-up happens each year, but I'm not really sure if the same sport is played each year of the match.
I wonder if we are going to have a play-by-lay announcer for this match. I kind've doubt it since this isn't an actual part of the normal athletic schedule at UIS. No matter, we are still going to have a ton of fun! I predict that our staff and faculty is going to have their butts kicked by Blue Crew. If that does happen, I am certainly going to do a BIG victory dance.
I can't play in the game-which is just too bad. My disability doesn't all me to have enough balance control in order to take part in contact sports. That doesn't matter, though. I think I'm going to have a blast coaching. I've never really been an athletic coach or assistant coach before, so this is going to be a new experience for me. I am really excited about it- I wonder if I'll be a better coach than I am at being a cheering, ROWDIE member of Blue Crew. No, I don't think this would be something I'd have more talent for.
I wonder if we are going to have a play-by-lay announcer for this match. I kind've doubt it since this isn't an actual part of the normal athletic schedule at UIS. No matter, we are still going to have a ton of fun! I predict that our staff and faculty is going to have their butts kicked by Blue Crew. If that does happen, I am certainly going to do a BIG victory dance.
I can't play in the game-which is just too bad. My disability doesn't all me to have enough balance control in order to take part in contact sports. That doesn't matter, though. I think I'm going to have a blast coaching. I've never really been an athletic coach or assistant coach before, so this is going to be a new experience for me. I am really excited about it- I wonder if I'll be a better coach than I am at being a cheering, ROWDIE member of Blue Crew. No, I don't think this would be something I'd have more talent for.
Saturday, March 24, 2007
A Spring Break Adventure
Just recently, my parents began kicking around the idea of me living on my own some day. My dad brought this up late last week, and I thought that he meant that I would live completely on my own in my own house or apartment- from the way he stated it at first. I had NO idea that he was thinking of an assistive living setting. Boy, was I confused!Today, I had quite an adventure. I began exploring a possible assistive living arrangement, the Mary Bryant Home for the Blind, which is located just outside of Springfield. The nice part about the facility is that the rooms are nothing like those in Lincoln Residential Hall. They are MUCH bigger.Another awesome aspect of the Mary Bryant Home is that it's a one-story facility, and there are no stairs. That really makes me THRILLED because I won't have to contend with any uneven surfaces if I have to use my wheelchair to get from any long distances.I also learned that the facility houses young adults and senior citizens, which makes me feel that- if I do end up living there, I will have an opportunity to make lots of friends, and I won't have to live on my own- without any help, which is the primary thing that scares me about having a place of my own.A big advantage would be that there would be accessible transportation to help me get, let's say, to and from school- for example. The one thing is, like the other things my mom and I are hoping to find out, would be whether there is a cost or fee that I'd have to pay.Among other homely emenities, there is an in-house barber shop, beauty salone, and store.While visiting the facility today, I saw and heard some dogs roaming around the Home. Some of the staff members bring their dogs to entertain the residents. That's something I like A LOT. I'd probably miss my two dogs like MAD if I ended up living there. Having dogs around will make me feel like my two dogs are with me.My mom and I are hoping that this opportunity works for me. Our plan is that, if I'm able to get in, my Mom will help me move sometime this summer. I hope to find out sometime quite soon, hopefully this week- how I need to pursue applying to be a resident.This is such an exciting day/time for me.I'm currently waiting to hear back from the director of the facility about how I need to apply, so keep me in your prayers- and keep your fingers crossed- for the best.
"Craziness!!!!"
UIS has been hosting an IHSA speech/debate competition this weekend. I don't even remember the last time I ever saw so many high school kids in one place before. It was a bit chaotic, to say the least!! Because today was such a nice day, many of the contestants spent a lot of time outside- while they were taking a break from the competition or waiting to learn the results of the judging. It was odd. I can't believe our campus was teeming with high school kids on such a glorious day.
Because it was such a glorious day, I decided to spend some time outside this afternoon. I couldn't really sit anywhere because there where people sitting everywhere on the patio outside the dorm. The bench outside the door was full from time to time. All right, so were the picnic tables. Knowing that there wasn't anywhere to really sit down for a while this afternoon, I decided to take a little walk- and enjoy the nice day.
As I took a little stroll from the dorm to the fountain and back, I saw kids sitting on the quad, just talking. I also got in the way- just slightly- of a game of catch with a little tennis ball. I also saw some kids playing frisbee. Seeing these kids enjoying themselves really made me glad that spring had finally arrived. Hooray! No more winter.
Because it was such a glorious day, I decided to spend some time outside this afternoon. I couldn't really sit anywhere because there where people sitting everywhere on the patio outside the dorm. The bench outside the door was full from time to time. All right, so were the picnic tables. Knowing that there wasn't anywhere to really sit down for a while this afternoon, I decided to take a little walk- and enjoy the nice day.
As I took a little stroll from the dorm to the fountain and back, I saw kids sitting on the quad, just talking. I also got in the way- just slightly- of a game of catch with a little tennis ball. I also saw some kids playing frisbee. Seeing these kids enjoying themselves really made me glad that spring had finally arrived. Hooray! No more winter.
Disability Doesn't Have Me
For a while last semester, I was using another website to educate people about my epilepsy, so I'd like to use this space to tell people about my physical disability. By creating this blog, I hope to raise total awareness about physical disabilities- not just in my community, but all across the world.
TheImage of My Existance And My disability, over time, has merely shaped who I am as an in dividual. Throughout my life, I have faced so many hurtles. Oneway I have tried to overcome all the challenges my life throws me is by telling my story at epilepsyfoundation.org/ecommunities/heroes. By doing this, I don't feel like I'm wasting my time doing nothing with my life. Why not try to use my life as an example of just how challenging it can be to live with such a complex physical disability? It's great to work towards teaching people all about what really makes me such a great person.Over the course of my life, people think that my disability is really who I am. They don't always want to take time to learn about my abilities and what I am actually good at. Boy, sometimes, I really wish that people wouldn't be so afraid to get to know me- and learn all about who I am, regardless of my physical differences.I absolutely HATE it when people won't take the time to get to know Nico, the advocate- not "the girl with a disability". Sometimes I wish that I had a majical potion to make people realize that there's a lot more to me than just my physical disability that can be seen on the outside. I feel that what's actually on the inside is way more important than what people see about me by looking at my outer appearances.
People, upon first look at me, sometimes think that- just because I have a disability-I won't be able to acheive success. Growing up was quite difficult at times, especially if people "assumed" that I needed help all the time. Growing up in a society that doesn't really know a lot about disabilities- especially my disability, CP- really makes me want to educate them about it. I have tried just talking about my disability; however, I haven't really had much success with that. I mean, people sometimes don't want to listen to what I have to tell them about my disability.That's why I have resorted to sharing my disability through my writing. By writing about my disability, I am able to share my personal story of what it's like to have a disability that constantly presents itself in many challenges to my crazy life.Sure, my life is crazy, but that's all a part of being a college student. You know, the one thing in my life that's extremely crazy is actually being able to handle many courses at once. Not very easy! Because of my physical disability, my muscles wear out quite easily, making it nearly impossible for me to really be able to carry a heavy backpack (which I'm not supposed to do, anyway) full of very heavy textbooks."You're not supposed to carry all those books," my high school teachers used to say to me.I knew that, but what was I supposed to do. Now that I'm in college, I feel like I'm the only person who actually realizes that I'm not even supposed to carry any heavy books. However, I have had to carry the textbooks to and from my classes, and my back muscles have told me that they don't want me to carry those heavy books. Sometimes, I wonder if I should ask a fellow classmate to carry my heavy backpack for me. . . however, not all of my friends have the same class schedule as I do.
Having cerebral palsy has presented my with many challenges- not just as a result of how my body works- but also because of how my body works. I can't really play sports because there really aren't any sports that can easily be adapted to meet the needs of people with physical disabilities, which I find quite discouraging. Now that I am in college, this doesn't really bother me; however, growing up unable to participate in any sports was often quite depressing. It wasn't a lot of fun just to watch friends participate in many sporting events that looked like a lot of fun to me.How would you feel if you couldn't participate in any sports just because of your disability? When it came to being as active as I really wanted, there were often times when I actually wished that my cerebral palsy would just totally go away- so I could be just like my "normal" friends.What exactly is "normal"? None of us are really normal. I mean, in some way- everyone has something that they'd like to change about themselves. For me, I sometimes wish that I could participate in more physical activities. Although I really enjoy being a sports spectator/cheerleader, it's not something that I'd really like to do all the time.
Like most 23-year-olds, I am enjoying college. However, having a physical disability really makes that pretty challenging at times. Getting around- especially in miserable weather conditions can often be pretty tricky sometimes. When it's difficult for me to get around, I often get frustrated when I'm unable to take part in the activities that I really enjoy doing the most- activities like going to Christian Student Fellowship on Friday evenings with many of my friends here at UIS.Who am I? My name is Nico Echols, and I'm a college student who hase a disability. The main disability I have is cerebral palsy, which can be a pretty tough disability at times. I use crutches to help me walk, but that's nearly impossible in bad weather conditions. Having cerebral palsy means that my balance isn't good; this makes walking even a short distance often very difficult for me.
I guess being a 23-year-old freshman isn't so bad. However, it has presented me with many challenges so far this year. I'm still getting used to all the new and "scary" experiences of being a "first-time" college student again has had its share of good and bad moments. On the upsite, I have had prior experience with getting a college education.
Sometime last semester, I had the opportunity to learn how to make my own pizza. I had a lot of fun. Up until that point, I have never actually had such a wonderful experience. With the endless challenges my unique disability presents me with regularly, doing the "normal" tasks is quite difficult for me to take on without any assistance. Luckily, I had good friends who were willing and able to provide the right amount of help that I had asked fore that awesome day.
I'd like to welcome you all to my continuing journey as a college student with cerebral palsy. But, before that journey can begin- I'd like to tell you a little about what cerebral palsy is. Cerebral palsy is a defect in the brain. It basically means that some parts of your body might not work at all- or you might even have very limited use of your arms and legs. Cerebral palsy might also cause you to have delayed or difficulties with speech. Moreover, CP can't be cured- it's something that I am going to live with for the rest of my life. However, I don't let my CP control my life because I like to think of myself as someone who is much stronger than this disability.
TheImage of My Existance And My disability, over time, has merely shaped who I am as an in dividual. Throughout my life, I have faced so many hurtles. Oneway I have tried to overcome all the challenges my life throws me is by telling my story at epilepsyfoundation.org/ecommunities/heroes. By doing this, I don't feel like I'm wasting my time doing nothing with my life. Why not try to use my life as an example of just how challenging it can be to live with such a complex physical disability? It's great to work towards teaching people all about what really makes me such a great person.Over the course of my life, people think that my disability is really who I am. They don't always want to take time to learn about my abilities and what I am actually good at. Boy, sometimes, I really wish that people wouldn't be so afraid to get to know me- and learn all about who I am, regardless of my physical differences.I absolutely HATE it when people won't take the time to get to know Nico, the advocate- not "the girl with a disability". Sometimes I wish that I had a majical potion to make people realize that there's a lot more to me than just my physical disability that can be seen on the outside. I feel that what's actually on the inside is way more important than what people see about me by looking at my outer appearances.
People, upon first look at me, sometimes think that- just because I have a disability-I won't be able to acheive success. Growing up was quite difficult at times, especially if people "assumed" that I needed help all the time. Growing up in a society that doesn't really know a lot about disabilities- especially my disability, CP- really makes me want to educate them about it. I have tried just talking about my disability; however, I haven't really had much success with that. I mean, people sometimes don't want to listen to what I have to tell them about my disability.That's why I have resorted to sharing my disability through my writing. By writing about my disability, I am able to share my personal story of what it's like to have a disability that constantly presents itself in many challenges to my crazy life.Sure, my life is crazy, but that's all a part of being a college student. You know, the one thing in my life that's extremely crazy is actually being able to handle many courses at once. Not very easy! Because of my physical disability, my muscles wear out quite easily, making it nearly impossible for me to really be able to carry a heavy backpack (which I'm not supposed to do, anyway) full of very heavy textbooks."You're not supposed to carry all those books," my high school teachers used to say to me.I knew that, but what was I supposed to do. Now that I'm in college, I feel like I'm the only person who actually realizes that I'm not even supposed to carry any heavy books. However, I have had to carry the textbooks to and from my classes, and my back muscles have told me that they don't want me to carry those heavy books. Sometimes, I wonder if I should ask a fellow classmate to carry my heavy backpack for me. . . however, not all of my friends have the same class schedule as I do.
Having cerebral palsy has presented my with many challenges- not just as a result of how my body works- but also because of how my body works. I can't really play sports because there really aren't any sports that can easily be adapted to meet the needs of people with physical disabilities, which I find quite discouraging. Now that I am in college, this doesn't really bother me; however, growing up unable to participate in any sports was often quite depressing. It wasn't a lot of fun just to watch friends participate in many sporting events that looked like a lot of fun to me.How would you feel if you couldn't participate in any sports just because of your disability? When it came to being as active as I really wanted, there were often times when I actually wished that my cerebral palsy would just totally go away- so I could be just like my "normal" friends.What exactly is "normal"? None of us are really normal. I mean, in some way- everyone has something that they'd like to change about themselves. For me, I sometimes wish that I could participate in more physical activities. Although I really enjoy being a sports spectator/cheerleader, it's not something that I'd really like to do all the time.
Like most 23-year-olds, I am enjoying college. However, having a physical disability really makes that pretty challenging at times. Getting around- especially in miserable weather conditions can often be pretty tricky sometimes. When it's difficult for me to get around, I often get frustrated when I'm unable to take part in the activities that I really enjoy doing the most- activities like going to Christian Student Fellowship on Friday evenings with many of my friends here at UIS.Who am I? My name is Nico Echols, and I'm a college student who hase a disability. The main disability I have is cerebral palsy, which can be a pretty tough disability at times. I use crutches to help me walk, but that's nearly impossible in bad weather conditions. Having cerebral palsy means that my balance isn't good; this makes walking even a short distance often very difficult for me.
I guess being a 23-year-old freshman isn't so bad. However, it has presented me with many challenges so far this year. I'm still getting used to all the new and "scary" experiences of being a "first-time" college student again has had its share of good and bad moments. On the upsite, I have had prior experience with getting a college education.
Sometime last semester, I had the opportunity to learn how to make my own pizza. I had a lot of fun. Up until that point, I have never actually had such a wonderful experience. With the endless challenges my unique disability presents me with regularly, doing the "normal" tasks is quite difficult for me to take on without any assistance. Luckily, I had good friends who were willing and able to provide the right amount of help that I had asked fore that awesome day.
I'd like to welcome you all to my continuing journey as a college student with cerebral palsy. But, before that journey can begin- I'd like to tell you a little about what cerebral palsy is. Cerebral palsy is a defect in the brain. It basically means that some parts of your body might not work at all- or you might even have very limited use of your arms and legs. Cerebral palsy might also cause you to have delayed or difficulties with speech. Moreover, CP can't be cured- it's something that I am going to live with for the rest of my life. However, I don't let my CP control my life because I like to think of myself as someone who is much stronger than this disability.
Last Night's Craziness
I don't like sweets in general, but I do enjoy spending a lot of time with good friends. However, last night was quite interesting. As it turned out, the weather didn't cooperate in order for the event to be held outside. Therefore, the event ended up being held in the Housing Commons, and the s'mores were made in the fireplace. . . which- to me- seemed a bit unusual. Who ever heard of s'mores being made inside using a fireplace? That was a new way to make s'mores that I have ever seen before- a bit unusual, but still a cool way to make s'mores.
One person had never made s'mores before, and it was quite amazing to watchim make a s'more for the very first time. It was a bit hilarious, too, because he made multiple attempts at making the perfect s'more, while everyone was watching him. One attempt ended with a burned s'more, and other attempts ended with marshmallows that ended up being a bit too sticky.
Wow, I'm glad I wasn't the one trying to make a s'more. Knowing me, I probably would have burned my first s'more on the very first try, and I might have been the laughing stock of all my friends. Boy, would that ever be embarrassing!
One person had never made s'mores before, and it was quite amazing to watchim make a s'more for the very first time. It was a bit hilarious, too, because he made multiple attempts at making the perfect s'more, while everyone was watching him. One attempt ended with a burned s'more, and other attempts ended with marshmallows that ended up being a bit too sticky.
Wow, I'm glad I wasn't the one trying to make a s'more. Knowing me, I probably would have burned my first s'more on the very first try, and I might have been the laughing stock of all my friends. Boy, would that ever be embarrassing!
Why Are My Parents Afraid to Let Me Try New Challenges?
When I graduated from high school three years ago, my parents didn't really think that I was really ready to go to college away from home. I guess they just didn't think I "could handle it" with the challenges my unique disability already presents me with regularly. For about two years, I lived at home while attending Roosevelt University in Chicago. At this time, it seemed like I was the only person who realized that I absolutely needed to relocate somewhere else- where I could actually get the helpful services that would allow me to try to be as independent as possible.At the end of my 2nd year at Roosevelt University, my parents decided that I could try transferring to UIS. This happened after I came home from a disability leadership conference, raving about just how UIS compared to being at Roosevelt University. For just a little while, my mom wasn't actually ready for me to totally be out of her site; however, she knew that I wanted to find my destiny.Destiny is exactly what I have found here at UIS. Through trying new things, I am beginning to discover exactly what my purpose in life actually is. This new experience hasn't been a bit easy, that's for sure; however, I am not letting that stop me from enjoying this new found life I have decided to take on. Taking on college, no matter where I am is often quite enjoyable. I feel like I'm "wading" in a lake, and the water is nice and refreshing
UIS Awesomeness
have been quite involved here at UIS. I'm involved in Blue Crew, and I'm currently sad that the year in athletic events is ending- or, it has already ended. . . I should say. I had a blast going to sporting events and cheering on the UIS Prairie Stars- it didn't matter if it was soccer, volleyball, or basketball. The games were always a lot of fun. The oddity, though, was that more attendance centered around the guys events than the girls events. To this very day, I'm stilli having a great deal of difficulty figuring out exactly the reason why that seems to be the case.Also being involved in Christian Student Fellowship is a lot of fun. It's just like going to church; however, the worship is student-led. We also have a minister who comes to campus for the weekly CSF gatherings, which is great! I have had a chance to be involved in a lot of CSF activities here on campus, and they have been a lot of fun. I enjoy getting to know a lot of new people, and taking part in a lot of new things.Tonight- after CSF- no matter the weather, we are going to make s'mores outside the Housing Commons. Luckily, the weather is warm enough for this particular event to be held outside- with a bondfire, as well as good friends; junk food, and more. However, this event might end up being altered a bit if it begins to rain. We wouldn't want to be outside, making s'mores- and get rained on. That wouldn't be fun at all.
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About Me
My name is Nico Echols, and being a "new" college student for the first time in just about two years has been full of challenges. Having a vast disability history has amounted to these challenges. . . . challenges that I am just now beginning to learn how to deal with, while trying to be as independent as I possibly can, a world that hasn't been easy for me.Living in Chicago all my life, I have previously had trouble getting my disability-related needs met. However, that just DIDN'T stop me from making the milestone of going to college. For the first year or so that I was a college student, I lived at home because the dorms at the university I attended weren't accessible, and my mom and dad just felt that I wasn't quite ready to be on my own. I think they were just afraid of letting me try something new- afraid of their little girl being away from them.
The strangeness to this is that I have a younger brother- who doesn't even have any special needs. My parents actually gave him the option of going to school close to home or out of state. He visited two or three different schools, all of which were fairly large- before he finally decided that he really wanted to go to school out of state. I'm really surprised my parents actually let him do that, considering that he's the youngest of us two kids- as well as not having any physical limitations. Why can't my parents be overprotective of him instead of me?
The strangeness to this is that I have a younger brother- who doesn't even have any special needs. My parents actually gave him the option of going to school close to home or out of state. He visited two or three different schools, all of which were fairly large- before he finally decided that he really wanted to go to school out of state. I'm really surprised my parents actually let him do that, considering that he's the youngest of us two kids- as well as not having any physical limitations. Why can't my parents be overprotective of him instead of me?
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